Those That


25 New Compassionate Allowance Conditions


1.     Angiosarcoma

2.     Atypical Teratoid/Rhabdoid Tumor

3.     Chronic Idiopathic Intestinal Pseudo Obstruction

4.     Coffin- Lowry Syndrome

5.     Esthesioneuroblastoma

6.     Giant Axonal Neuropathy

7.     Hoyeaal-Hreidarsson Syndrome

8.     Intracranial Hemangiopericytoma

9.     Joubert Syndrome

10.   Leptomeningeal Carcinomatosis

11.   Liposarcoma- metastatic or recurrent

12.   Malignant Ectomesenchymoma

13.   Malignant Renal Rhabdoid Tumor

14.   Marshall-Smith Syndrome

15.   Oligodendroglioma Brain Tumor- Grade III

16.   Pallister-Killian Syndrome

17.   Progressive Bulbar Palsy

18.   Prostate Cancer - Hormone Refractory Disease - or with visceral metastases

19.   Revesz Syndrome

20.   Seckel Syndrome

21.   Sjogren-Larsson Syndrome

22.   Small Cell Cancer of the Thymus

23.   Soft Tissue Sarcoma- with distant metastases or recurrent

24.   X-Linked Lymphoproliferative Disease

25.  X-Linked Myotubular Myopathy













If you have any of the new conditions see a certified VSO immediately.  You may be entitled to the allowance. 


To see the entire list of conditions covered under Compassionate Allowance click here.

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